What a week!

This has been an interesting week for our little family. We decided to take a trip down to Titusville to see my parents for a week and I wasn't sure how Kiley would do on a 5 hour drive, but she did pretty good! She slept pretty much the whole way! That wasn't so good that night, though, but at least she wasn't screaming in a tiny car. The visit went well, my parents are absolutely in love with her. My mom and dad would fight over who got to hold her next, and then when my sister came home, she started fighting with them, too! My grandma also got to meet her and shared some interesting stories about what my mom looked like when she was born (and she wasn't exactly politically correct, so I won't share them here!) Here are some pictures from our trip:

Kiley in her outfit she wore for Newman Family Pictures

Kiley, Me, my Mom, and My Grandma, 4 generations of Butler women!


How I rang in 2009!


Kiley and Grandma taking a nap


The women in my family


Kiley's first trip to the river to see where the shuttle launches!

SO the trip wasn't all fun and games...on New Year's Eve, I got a phone call from Shand's Pediatric Pulmonary Center and they told me that when they did the newborn screening on Kiley in the hospital, she tested positive as a carrier of at least one of the mutated genes for Cystic Fibrosis. What a shocker! Basically what that means is we had to take her to Shands to get additional testing to see if she had it, but we definitely know she is a carrier, which means either John or I passed it on to her, and she could pass it on to her children, so her future husband will need to be tested as well.
We took a quick trip down to Shands this morning (Starleigh, we had to get back because John had something to do for school, otherwise we would have visited!) and they did something called a sweat test where they put this chemical that induces sweat on both legs, then they put electrodes and a small electric current stimulates the sweat glands for 5 minutes on each leg. Someone with Cystic Fibrosis can't regulate the sodium their body intakes, so if there is an abnormally high amount of salt in the sweat, she has it. It was very hard for John and I to watch her get this test down because she was screaming and we couldn't do anything to comfort her, we just had to sit there.
This whole week was spent worrying and wondering, but I am happy to report that the test came back negative! We didn't want to tell people until after we knew if she had it or not, but now that we know she is happy and healthy, I have to share! John and I are going to talk to our doctor about getting genetic testing done because we want to find out who the carrier is because my sister and his siblings need to know if they could possibly have the gene for their future children.
I just don't know how much more this little girl is going to put me through! She isn't even a month old yet and she has given me so many heart attacks!